Welcome Members!

Welcome! We Are a Patient-To-Patient Support Community for People Living with Crohn’s and Colitis

Our mission at LifeWithCrohnsColitis.org is to ensure that patients living with Crohns and Colitis, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

LifeWithCrohnsColitis.org is part of Ben’s Friends, a network of safe and supportive patient communities for anyone affected by a rare disease or chronic condition. Recognized as a 501(c)(3) non-profit, Ben’s Friends is a grassroots organization run by patients for patients. It is not a top-down, “expert advice” experience but a community offering peer to peer support. The value of this approach is evidenced by our hundred volunteer moderators, who are either patients themselves or relatives of patients, who believe in the mission and are willing to invest their time and share the knowledge and insights they have gained with members arriving daily in need of help. Ben’s Friends considers the patient perspective in everything we do.

Crohn’s disease is an inflammatory bowel disease (IBD). It causes inflammation of the lining of your digestive tract, which can lead to abdominal pain, severe diarrhea and even malnutrition. Inflammation caused by Crohn’s disease can involve different areas of the digestive tract in different people. The inflammation caused by Crohn’s disease often spreads deep into the layers of affected bowel tissue. Like ulcerative colitis, another common IBD, Crohn’s disease can be both painful and debilitating, and sometimes may lead to life-threatening complications.

Ulcerative colitis (UC) is a chronic disease of the colon and rectum, together known as the large intestine. When inflammation and ulceration of the large intestine mucosa, or innermost lining, occurs, tiny open sores may form on the surface of the lining.Because inflammation damages the lining of the intestinal wall, it may bring about the onset of a flare, including diarrehea, bloody stoo, and abdominal pain or cramping. , UC affects only the innermost lining, whereas Crohn’s disease can affect the entire thickness of the intestinal wall.

Ulcerative colitis differs from another inflammatory bowel condition, Crohn’s disease. While Crohn’s may affect any part of the gastrointestinal (GI) tract, UC only involves the colon and rectum.

This site is a virtual community intended to be a safe place for patients and family members as young as age 12, to visit for information, discussion, venting and mutual support. Members come from many backgrounds. Some have a strong religious faith, and others no faith; some are children and others adults, rich and poor, graduate educated or taught by life. Our common denominators are that we share a life journey, and we try to help each other.

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Why create an account?

Posts on the different Ben’s Friends communities can be read by anyone on the internet. You can browse through the different topics and find most of the information you’re looking for but there are many things you won’t be able to do unless you create an account. These include:

Making your own posts. Although you’re able to find useful information just by reading other members’ posts, you might still have a lot of questions in your mind. Either you want to start a new topic to talk about them in detail or you want to reply to a comment on a thread. These won’t be possible unless you create a new user account.

Viewing other members’ profiles. Member profiles include information about the country or region they are from, whether they are a patient or a caregiver, and details about their disease and treatments. Maybe you came across an interesting post and you want to learn more about the member. Or maybe you’re looking for members who are from the same country as you. Having a user account allows you to see other member profiles and find information that may be relevant.  

Sending private messages. Aside from being able to post publicly and commenting on a thread, having a user account also allows you to send private messages both to other members and moderators. In case you want to discuss a topic only with a specific person, this is possible by sending private messages when you have created your account.

Click here to create an account and join. 

Want to learn more about Crohn’s and Colitis disease?

Is your family or friend affected with Crohn’s or Colitis?
What kind of disease is this? What food diet fits Crohn’s or Colitis patients?

Visit Crohn’s/Colitis 101
Read about what causes Crohn’s/Colitis disease, who gets Crohn’s, and how can one cope with the chronic condition

LATEST DISCUSSIONS

  • Our New Ben’s Friends Classroom
    by benmunoz on January 25, 2023

    Clasina Field – November 1, 2019 You must be wondering what Seenie has been doing these days. Well, I’ve been building our Google Classrooms and library where our Moderators and Interns will be able to learn the skills and tricks of the Moderator Trade. Right now, I’m about to stock our library with reading material and things like Slide Guides. It will all be set up for independent learning, at your convenience. Of course, there are no grades and certainly no report cards. But there are […]

  • Spotlight on Our Board Member: John Stamler
    by benmunoz on January 17, 2023

    Ben Munoz – November 9, 2019 John Stamler, Ben’s Friends’ treasurer and a rare disease survivor himself, had a conversation with Garry Turner in the Episode 81 of Value through Vulnerability podcast. John shared his inspiring work as a mentor to startups and his admiration for the entrepreneurs he works with who are so passionate about what they believe in. He also talked about his experiences related to a rare heart defect which eventually led to his joining Ben’s Friends as a patient […]

  • Ben’s Friends Members to Benefit from Cutting-edge Health Data Management Tool
    by benmunoz on January 16, 2023

    Sascha Gallardo – January 14, 2020 Members of Ben’s Friends patient communities can soon take advantage of a state-of-the-art technology that will enable them to manage their medical information in a secure multilingual digital tool, give them access to an online referral service for physicians and clinics, and let them participate in research that will benefit the rare disease community. Ben’s Friends is partnering with Backpack Health to provide a custom data management app to its […]

  • Ben’s Friends Brings Learning About Patient Support to the Next Level
    by benmunoz on January 5, 2023

    Sascha Gallardo – January 20, 2020 Ben’s Friends created a user-friendly online training facility that makes learning about providing support to patients simple and easy. Dubbed as Ben’s Friends U or Ben’s Friends University, it makes use of Google Classroom to create one virtual classroom for Moderators and another one for the Interns. Using this G-suite tool, the Ben’s Friends team is able to build a “library” of links to learning materials such as documents, websites and video […]

  • Ben’s Friends Lead InternsSpotlight on our Member: John aka Jokhere from Living with Polyneuropathy Community
    by benmunoz on December 27, 2022

    Sascha Gallardo – March 7, 2020 Polyneuropathy is often characterised by numbness, tingling sensation, burning pain and even paralysis of the hands and feet which can later on progress to the other parts of the body such as the arms and legs. This condition can be either acute, which appears suddenly but resolves slowly, or chronic which progresses gradually. It has different classifications such as the Guillain-barré Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), […]